Wednesday, January 22, 2014

Cleveland clinic update,trying a new approach to water

            Well the last time I posted on here I must admit I was bit of a nervous wreck.  I was on my way to The Cleveland Clinic, was concerned that I was going to have fill out that stupid survey of questions, but to my surprise no I didn't.  When they literally just called my name to just verify medications I am on and they didn't give me the hand held computer I literally wanted to jump up and down and yell "YAHOOO!" but of course I didn't take it that far LOL.  I gave myself a little silent round of applause and opened my book to read.  But to both my mom and my surprise it didn't that long to get me prepared to see the Dr.  He walked in in no time just as I opened my book where both he and mom laughed because they could both tell I was in the middle of a good part and he could tell I wanted to continue.  Mom just laughed and said So much for reading.." 
                      He says I am doing well.  I am not cured but my seizures are under control.  He says I it is safe to be on medication for the time being because my EEG results show some abnormal activity that could trigger a seizure if I went without medication for an extended period such as a month.  But like I keep telling people it is only three little pills at bed time and that's better than taking 5 pills three times a day and not hardly helping so don't feel sorry for me.  Well anyway he basically advised me to drink water because the medication can lead to kidney stones.  So anyway I have been drinking water with the Dasiani flavor drops but I am looking for a natural way without the artificial stuff like asperame.     If anyone has any suggestions let me know thank you.  Bye.

Monday, January 13, 2014

It's that time again

        Well it's that time again.  Mom has taken off work to take me up to Cleveland for my Cleveland Clinic  appointment and here I am just dreading it.  Many people don't understand why I dread it so much because I have been doing well.  Four years without any seizures and I am just going for my check up with my Dr which I do like.  He's caring and really listens to what you have to say.  I think the reason why I dread is so much is because as you are waiting they give you a questionire to fill out and it contains a lot of lengthy and intense questions like,
        Rate from 1 to 10 how often do you think about sucide?  Each number has an answer
         Some of the questions I do understand why they put on there but a few in my opinion are too personal in my opinion.  It's like who reads this stuff?  That is probably what I hate about it the most and of course being weighed.  But I know I am not alone on that lol.  My dr will check my prefial vision and will ask me to walk and asks if we need anything and writes the refills on prescriptions and says I am free to go till next year.  :-) But mom says I should be excited about going and I must admit I am not!  When I see the building it brings up the dark memories as well as the good. Well better go.  I'll keep you updated on Facebook

Sunday, January 5, 2014

Hoilday questions and answers

               If you an avid follower of mine you are probably asking yourself Where is she? When is she going to post again?  I know, I know I haven't been posting a lot lately.  As you know the holidays seemed to come in a rush since Thanksgiving came so late this year.  As many of you know I spent extended time with uncle Rick in South Carolina during our time in Thanksgiving.  You probably really don't need many updates about that it was just a repeat of what I did last year .  I cooked a meal for them, we shopped, and we went to go see a movie.  I would say the only thing that was different was that I got to meet Judy's family in Charleston.
                      But anyway you are probably wondering how my Christmas and birthday was along with my New Years and a few other things you are probably wondering about so I will get to them now.
                                Did I have a good birthday and how did we celebrate?
                               I had a very good birthday.  As usual we celebrated it with my mom at our house. My grandparents came over along with uncle  Craig and aunt Lisa and yes we had a smaller crowd than we've had in the past but we still had fun.  We had beef Wilington and my home made ice cream cake for dessert.  As far as gifts I got cozy socks along with a bag of chocolates from aunt Lisa and uncle Craig, a pandora charm from grandma and grandpa, and a sweater from mom and Mark along with another charm.
                                    How did we celebrate Christmas and what gifts did I receive?
                                      James, Nate, and I spent Christmas Day with dad.  I got dropped off a little early by James and Carson on their way to visit Carson's family.  Dad and I just talked as he was preparing our Christmas meal.  It was nice having alone time with dad after not seeing him in awhile. We were joined by Nate, Hailee, James, and Carson a bit later and we all had fun watching dad be his funny self while he opened his Christmas gift which was a new grittle.  After awhile of talking and joking around Hailee and Nate dropped me off at grandma's so that I could say hi to uncle Roger and his family.  If you want to know what I received for Christmas I got clothes, a pair of riding boots, and chubby sticks which of course are lip sticks, and gift cards, money, and a couple other things.
                                      How did I spend my New Year's?
                                        New Year's Day was quiet and relaxing.  It was just a day to vegetate after all that went on with all the events that we had going on.  New Year's Eve was when we partied.  We went to Rachel's house and celebrated with them.  We played pictionary and a couple other games and watched the ball drop so yes that means we stayed up to greet the new year.  :-). So yes we deserved a day to vegetate New Year's Day.
                                           What is my New Year's resolution
                                                   I don't like to make a resolution like lose weight because I know I will just dwell on it and dwelling on it doesn't help me the way it might help others.  So I don't like to think of the typical ones such as that but that doesn't mean I don't have one.  I set myself a goal to write at least 75-125 on my.book by January 1st next year.  Wish me luck.  Well better go.  I am going to get cleaned up and get to work on the book. Till next time have a good day.